Monday, August 15, 2016

Recently watched, TransFatty Lives. A biographical documentary about Patrick Sean O'Brien's journey through ALS. Film captures his humor, observations, reflections etc. All lacking in self-pity or "why me's". Lately I've been challenged by some health discomforts of my own. But nothing compares to what he is bravely enduring. So true, there is always someone in worse circumstances.

Something Patrick said that will stick with me, especially during moments when I feel like I'm being defeated by this condition of Renal Disease. While confined motionless to a bed, he chronicled his annoyance with the bugs that occasionally made his body their home. In his condition, there wasn't much he could do, other than blink. Finally he realized, surrendering somehow released him from the pestering the bugs presented.

Imagine. Even measly bugs can be your teachers. When you are forced to "be still". Amazing things you'll soon discover in that stillness. The core of who you are will soon blossom as superficial, trivial things that sometimes consumes us all become bugs in our lives.

Personally I had discoveries immediately following the death of a child. And I have discoveries following near death of my own. When faced with the worst, profound lessons can be had. Situations due to lack of: resources, money, influence and so on.

At some point when you become physically or emotionally paralyzed to where you can't run. Can't shop. Can't indulge in any of those things or behaviors you may have used to block out the realities around or within. Reality is, when life happens, you will have no choice but to stop. Soon you'll become enlightened. Become conscious. You'll see. You'll feel. You'll discover all senses and somewhat feel like, how I frequently described after losing a daughter, you'll feel like a superhero. Totally in-tuned to, totally unmoved by the world. Stoic.

Soon you'll attract that which is for your good and repel that which is not. People, places, things, ideas and beliefs suddenly become transparent. You have been gifted a new set of superpowers, as I described it a decade or so ago.

"Transfatty Lives is must see film. I was in tears but not drowning in sorrow. While in my own temporary vulnerability, I was glued to the screen. Transfixed (and transformed) on Patrick Sean O'Brien's courage and grace in the midst of his ordeal was inspiring. A teachable depiction about how to maintain a sense of SELF despite obstacles being faced.

Daily, I do my best. I know if anything, my twelve year old is watching. Absorbing. She's learning about how to cope, how to comfort, how to have compassion by seeing her "pillar of strength", her mom, conquer and overcome. My son witnessed my torturous grief through child loss. My daughter is witnessing this new battle our whole family is facing - together.

I'd hope that I could be an inspiration to others in some in some form. In some way, I have my own documentary happening right here. Right now. Times when I find myself whimpering in a fetal position, helpless. Unknowing how or if I'll survive the limitations that this condition has bestowed upon me. I quickly regain more logic and reasoning. Remembering where I was back in 2014 and where I am now. There still is much for me to be grateful. I'm still privileged my mind, my sanity. Most importantly, my family, my friends. And the battle is holding on to those fortunes maintained while in the midst of any tribulations. Stay optimistic. Stay thankful. Keep pushing through life mindfully. Embrace all moments. In the storm, the sun will eventually come up. Hold on. Wait, patiently. Surrender to those things, "the bugs" which are impossible to fight.


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